International Cri du Chat Awareness week is this week…and in honor of our beautiful children, the U.S. society has put together a video sharing things our children CAN do even though the doctors said they would never do them. I definitely wanted to participate in this project.
Every day is difficult. It is. That’s the truth. Every day Olivia struggles with some part of her life. And we struggle along with her. Whether it’s using the bathroom, or getting dressed, or fixing her hair, or walking to the bus, or picking her skin, or hitting, or using mean words, or trying to speak so that others can understand her…she struggles. And we struggle. It hurts. Every day. To see your daughter struggle to do the most basic things. It’s a very dark, horrible place that you can get stuck in if you let yourself. That’s the truth. So every day you have to snap yourself out of it. Some days, I can pop right out of it. And other days? I’m stuck like I’m sinking in quicksand. The best advice I give to myself? Focus on what she CAN do. It’s not easy, and there are days that I’m not capable of doing it, but it works. There is so, so, so much that my girl can do. Things we never dreamed of. Things the dumbass doctors told us she wouldn’t do. We are so proud of her it’s impossible to express that much pride.
I hope you’ll take a few minutes to watch all of the things my beautiful, amazing, perfectly made little girl CAN do.