Sometimes this world of special needs just…sucks.
If you read my post on Saturday about Amelia, you know what I’m talking about. My stomach seriously hurt all day Saturday thinking about it. A doctor deciding that a child’s life wasn’t worthy simply because her brain doesn’t work like everyone else’s? A hospital administrator saying that a mother was too involved? What is this world coming to?
My friend Hannah and I were chatting on Friday and she was upset because a little girl in their therapy group had passed away. To quote Hannah, “I didn’t sign up for this shit.” I totally agreed. It’s heartbreaking.
On Sunday, my dear friend Jenni had to say goodbye to her sweet little almost 5-year-old daughter Celia. Celia had been battling Batten’s Disease for almost 4 years. Her parents knew it was fatal and simply had to watch and wait for her to die. Devastating.
While it’s true that these things do…absolutely suck…I have learned so much from being in this life of special needs. Jenni and I had a conversation just last week about my “I Will, I Won’t” post. I was worried that I had offended her because she wrote that she didn’t have any “I wills”. My heart broke for her. But she assured me that she knows I treasure each and every one of my wills…and try not to dwell on the don’ts. She has taught me so much through her blog and our friendship. She finds the joy in life and tries to learn from her experience with Batten’s instead of letting it devastate her.
I guess what I’m asking is will you pray for them. I can’t imagine losing a child. Even if it was expected. I can’t imagine the devastation they are going through right now. Will you keep them in your thoughts? Thank you.