As much fun as we had on our vacation, I got a wee bit tired around…day 2. Not because the kids were making me crazy or because we had been driving for hours on end or because I had to hold down the string to get water and there were no fluffy robes. No, that wasn’t it.
It was how people were treating us because we have a child with special needs.
I’m not sure if it’s because she’s older now and it’s more obvious that she has special needs or what but seriously people. STOP. LOOKING. AT. HER. ME. US. Take a f’ing picture, it lasts longer!
Let’s start with the Josh Turner concert (I am still waiting from his press people for pictures!). We checked ahead of time to make sure that strollers were allowed. The venue was outside and there would be a lot of walking. Olivia’s a good walker, but tires out pretty easily. The website said strollers were allowed.
We get to the venue and they wouldn’t let us bring in her stroller. Even though we explained that it is really her wheelchair. They gave us all kinds of crap about it but finally let us in. Thank God a girl named Kelly who worked there stepped in and took over or else we would have missed meeting Josh all together.
But still I was pissed.
I know there are rules but sometimes it’s not black or white. It’s gray. And you need to use your freaking head and realize that this stroller should be allowed.
Then the staring. Seriously, I don’t understand people. Even kids that stare piss me off. Haven’t they ever seen anyone different in their whole life? I’m assuming they’ve left their house before. That their parents have told them not to stare at someone who is overweight/bald/ugly. Same freaking rules apply here!! It’s just so ridiculous.
And so very tiring.
While swimming at the pool one day and enjoying the nice afternoon with my kids, and old woman (at least over 65) swims over to me and says “She got cerebral palsy or what?”
She doesn’t know me from Adam! Why does she care? What’s it her business? Leave me alone!
I look at her and in my bitchiest voice say “No, she has Cri du Chat syndrome.” Which always shuts ’em up. They have no clue what I’ve just said!!
My friend Michelle says I should make up business cards that say “Leave me the f*** alone. Google Cri du Chat Syndrome.” Whattya think?
We go to my Dad’s lake and at one pool they will let Olivia where she was allowed to where her floaty suit and another where she wasn’t. Same place. Seriously. Then they said she couldn’t wear it to go down the slide that was in 7 feet of water. She was allowed to go down the slide though. We explained our situation and they still said no. So I’m all “So you’d rather my daughter who has special needs and can’t swim go down the slide in really deep water and chance drowning than just let her wear the suit?” Yep. Then 5 minutes later? Down go 2 kids with floaties on. I almost lost it.
It’s just constant stuff like this that makes me insane. Just leave me alone, only say something to me if it’s nice and stop staring at my daughter.
Is that too much to ask???