Awareness and Help

We interrupt this week’s Friday Flashback with a plea for help…

First, Batten’s Disease Awareness weekend starts today. See Jenni’s info below for more information. Please help if you can. I’ve ordered from Cardthartic before and the cards are beautiful.

Celia is lucky to have so many friends who give voice to the fight against Batten Disease.

We are fortunate to know so many of you will, too. Because it’s Batten Disease Awareness Weekend, we ask that you consider telling someone Celia’s story. Also, please consider participating in any of the following fundraisers:

June 12 — until then, order jewelry from CaleCamo and 20-25% of your purchase will go to BDSRA for research.
*To read about promising research that has finally reached clinical trials and has been funded partly by BDSRA, go here.

Indefinitely — order the Sweet Celia headband from Maya’s Curls, and thirty percent of the sale will benefit BDSRA.

Indefinitely — order Celia’s Cardthartic card and profits will go toward infantile Batten research.

through mid-July — follow Noah Coughlan as he continues to run across the country promoting awareness. Pledge per mile this weekend, if you can.

July 30, 2011 — walk or run in the Heart of Ohio 5K/10K/1M event in downtown Columbus. HoO promotes numerous Ohio-based non-profits and BDSRA has been invited to participate this summer.

October 15, 2011 — bring your pooch to the 2nd annual Barkin’ for Batten Dog Walk at Hannah Park in Gahanna at 11:00 am.

November 2011 — join us for the 3rd annual OSU MICU’s Walk for Celia at Antrim Park, near Worthington. Exact date and time to be determined.

Also, our dear friend Heather’s son is in desperate need of vision therapy and, surprise, surprise, insurance doesn’t cover it. Here is info from Heather’s site:

You are all amazing. My family has been changed forever because of you.

Please keep the love going.

Keep sharing Eli’s story and redirecting people back to his ChipIn account if they want to donate.

Thank you for your love and support. Thank you for your friendship. Thank you for taking care of my family.

I know we’re all pinching pennies but I’m sure any little bit will help!

Happy Friday!

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2 responses to “Awareness and Help

  1. Thanks, T! Appreciate you sharing your little corner of the www with Celie 🙂 Going to read about Eli now…

  2. Thanks Tiffany. This is truly appreciated! Love you 🙂

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